At the age of seven, Lucas was assaulted. A rare disease quietly invaded his brain and began dismantling it little by little. It is called adrenoleukodystrophy, and we never imagined that, besides a few doctors, we would also have to spell it out. By the time we realized it, many of his beautiful neurons had already been destroyed, and many others held hostage. In a frantic race against time, an incredible team of doctors and nurses managed to capture the culprit and save Lucas (thanks to our National Health Service).
With many therapies, love, and stubbornness, Lucas’s brain gradually reinvented itself. We reinvented ourselves too, to walk together on this new path. The brain injuries left many cliffs, missing signs, and dead ends. Many of the paths we are tracing ourselves, because no one has ever walked here, and we never have either. New land. To be discovered. To be cultivated.
For many days, the cursed disease laughs at Lucas, laughs at us, but there are more days when Lucas, we, and everyone with us laugh back. And our laughter is far more contagious, far more powerful.
Saved by laughter, we face the questions Lucas asks us: How will I have a job? A home? A girlfriend?
Universal aspirations that, at first glance, seem denied to him. Not because there is a barrier, but because he faces barren terrain, a society that continues to focus on disability rather than the person, equity, and scarce support. A society in which we still cannot fully conjugate the verb “to include.” Therefore, on the board of a full life, Lucas remains at the starting square.
Unless.
Unless we jump over the wall of limitations and take what Lucas does in unusual, provocative, and unique ways as a new language, an unexplored planet.
Unless we take some of his obsessions as our own. Designing clothes and being a fashion designer is one of them.